In this section you can read various research news articles that have important topics relating to rare genetic disorders.

This section is for any parents or professionals who wish to read up to date information about syndromes and to broaden their knowledge.

The articles are ordered with the newest piece of research first and the articles can also be filtered by syndrome by using the filter.

We hope you find the research articles interesting!

Cornelia De Lange

Subtle differences in social behaviour identified in people with fragile X and Cornelia de Lange syndromes

Researchers at the Cerebra Centre for Neurodevelopmental Disorders, University of Birmingham have discovered that...

Cornelia De Lange

Eye-tracking study confirms people with fragile X and Cornelia de Lange syndromes look differently at social information

Researchers have identified differences in the way in which people with different genetic syndromes...

General

The challenge of understanding autism in genetic syndromes

We still need to learn much more about Autism Spectrum Disorders in genetic syndromes...

General

New perspectives on understanding challenging behaviour

Some individuals with intellectual disabilities can show behaviours such as self-injurious behaviour and aggression...

Cornelia De Lange

New findings replicate association between repetitive behaviour and executive function in fragile X and Cornelia de Lange syndromes

Executive function is a term you may be familiar with, but most people have...

General

Parent Story Workshop

The FIND website would not be what it is today without the input from...

General

The Launch of FIND

In September 2014, FIND (Further Inform Neurodevelopmental Disorders) goes live.  This is the first time...

Cornelia De Lange

NEW RESEARCH STUDY Social Development in Cornelia de Lange syndrome

Over the last ten years researchers have learnt a lot about Cornelia de Lange syndrome...

Prader-Willi

Temper outbursts in Prader-Willi syndrome

  Temper outbursts are commonly described in people with Prader–Willi syndrome (PWS); however they are...