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Research Projects

The following section contains details of research projects that are currently being conducted in individuals with rare genetic syndromes and neurodevelopmental disorders. The projects towards the top of the page are projects that are currently in need of participants. Click on the project to read more about it and find out if you can take part. At the bottom of the page you can find information about research projects that are ongoing that are no longer recruiting participants. These might be projects that have taken place within the last five years where results are currently being analysed or written up for publication. Click on the project to read more about the progress of this project or to download preliminary results.

Current | Cri du Chat

Identification of emotional distress in individuals with moderate to profound intellectual disabilities

We are inviting parents/carers of individuals aged 4 years and older, with moderate-profound intellectual...

Current | Cri du Chat

Exciting New Research in Autism

A new research study investigating mental health in people with autism is being launched...

Current | Cri du Chat

New Study Looking at Non-Compliance in Children

Researchers at the School of Psychology, Queen’s University Belfast are looking for parents and...

Syndrome Tags

Current | Cri du Chat

PREDICTORS

PREDICTORS: Parent Resources for Decreasing the Incidence of Change Triggered Temper Outbursts The team at...

Archived | Angelman

Communication Pilot

Measuring communication in genetic syndromes: A pilot study Researchers at the Cerebra Centre for...

Archived | Angelman

Self-injurious behaviour in non-verbal children

Background Self-injurious behaviour in non-verbal children, such as head banging, face slapping and self-biting,...

Archived | Cornelia De Lange

Long term outcomes of individuals with Cornelia de Lange and Cri du Chat syndromes

Funded by Cerebra from 2009 to 2012 Background There is very little known...