Research Projects

The following section contains details of research projects that are currently being conducted in individuals with rare genetic syndromes and neurodevelopmental disorders.  The projects towards the top of the page are projects that are currently in need of participants.  Click on the project to read more about it and find out if you can take part.  At the bottom of the page you can find information about research projects that are ongoing that are no longer recruiting participants. These might be projects that have taken place within the last five years where results are currently being analysed or written up for publication.  Click on the project to read more about the progress of this project or to download preliminary results.

Current | Prader-Willi

Exciting New Research in Autism

A new research study investigating mental health in people with autism is being launched...

Current | Prader-Willi

Communication Pilot

Measuring communication in genetic syndromes: A pilot study Researchers at the Cerebra Centre for...

Current | Prader-Willi

New Study Looking at Non-Compliance in Children

Researchers at the School of Psychology, Queen’s University Belfast are looking for parents and...

Current | Prader-Willi

PREDICTORS

PREDICTORS: Parent Resources for Decreasing the Incidence of Change Triggered Temper Outbursts  The team at...

Current | Prader-Willi

Three new exciting research studies in Prader-Willi syndrome from Belfast University

Three new research projects are being conducted by Kate Woodcock at Belfast University.  The...

Archived | Prader-Willi

Understanding the Development of Resistance to Change in Individuals with a Neurodevelopmental Disorder

  Some individuals who have neurodevelopmental disorders such as Prader-Willi Syndrome can have negative...

Archived | Prader-Willi

Are you interested in taking part in a research project about skin picking in Prader-Willi syndrome?

Aims of the study This study aims to further our understanding of skin picking...

Archived | Angelman

Sleep Disturbances in Children with Neurodevelopmental Disorders

Funded by Cerebra from 2013 to 2016   Please note: This project has now...