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  • Gestures and communication in Cornelia de Lange syndrome

    A new paper has just been published by researchers at...

  • The Behavioural Phenotype of Cornelia de Lange Syndrome

    Presenter: Prof. Chris Oliver

    Date of presentation: 6th November, 2017

    ...

  • Sleep: A New Cerebra Guide for Parents

    A new guide for parents has been developed by researchers...

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    Research has shown that many behaviours that challenge...

Useful Links

Below is a list of links to external websites that contain useful information about Lowe syndrome.

 

Lowe Syndrome Trust

UK charity- The Lowe Syndrome Trust

 

Lowe Syndrome Association

LSA- An international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome

 

CONTACT: Lowe Syndrome

Support for families with guidance and information

 

Diagnosis

Genetics Home Reference - provides background information to genetic testing

 

 

 

 

 

 

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