An introduction to Rubinstein-Taybi syndrome by families and researchers
Behavioural characteristics
When people have a diagnosis of Rubinstein-Taybi syndrome it means that they are more likely to engage in certain behaviours than people without this syndrome. This is known as a ‘behavioural phenotype’.
If a person has a diagnosis of Rubinstein-Taybi syndrome it does not mean they will show all behaviours associated with the syndrome and it is extremely important to remember that everyone with Rubinstein-Taybi syndrome is an individual.
Understanding which behaviours are more likely to occur in Rubinstein-Taybi syndrome means that parents, carers and professionals are in a stronger position to support a person with Rubinstein-Taybi syndrome. This is because they can learn about why this behaviour is happening and develop interventions that are specific to people with this syndrome.
The following sections describe a range of behaviours including: