Emotion regulation difficulties in rare genetic conditions associated with visual impairment: new insights for clinical practice


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Presenter: Dr Jane Waite

Date of Presentation: 4th July 2018

Conference of Event: Childhood Visual Impairment and Mental Health Conference

Venue: Great Ormond Street Institute for Mental Health


Overview of the talk


In this presentation Dr Waite discussed the current approaches to assessing temper outbursts in children with intellectual disability and visual impairment. She described traditional behavioural approaches to understanding these behaviours as well as the importance of considering person characteristics when assessing temper outbursts. Dr Waite presented the example of Lowe syndrome where temper outbursts are highly prevalent, and argued that difficulties delaying gratification may contribute to the higher prevalence rates of temper outbursts in this syndrome.


About the Presenter

Dr Jane Waite, Lecturer in Psychology, Aston University, Birmingham, UK.

Jane Waite is a Lecturer in Psychology at Aston University and a Clinical Psychologist.  Jane completed her PhD at the University of Birmingham, which focused on the behavioural and cognitive phenotype of Rubinstein-Taybi syndrome. Following her PhD, she continued her research into behaviour and cognition in rare genetic syndromes including Williams, Kleefstra, Lowe and Bardet-Biedl syndromes. 

Jane’s current research focuses on understanding the development of mental health difficulties, and improving the identification of these difficulties, in people with intellectual disabilities, rare genetic syndromes and autism spectrum disorder. She is currently developing clinical assessment tools for use within the NHS. 

Jane has also worked extensively on online resources (Further Inform Neurogenetic Disorders (FIND); www.findresources.co.uk) with the aim of improving knowledge exchange between families and professionals.  




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